Links and Resources

1. Cardiac Rehabilitation
   1. General
   2. Self Management
   3. Exercise
   4. Sexual Activity
   5. Diet
   6. Practical
      1. Work
      2. Driving
      3. Insurance
2. Mental Health & Wellbeing
   1. Support for Carers
   2. Relaxation
   3. Spiritual Care
3. Post Traumatic Stress Disorder
4. Peer Support
5. Brain Injuries
6. Inherited Conditions
7. Death & Dying
   1. Planning Care
   2. Do Not Attempt Cardiopulmonary Resuscitation
   3. Practical Issues
   4. Bereavement
8. Miscellaneous
   1. Organisations
   2. Strategies
   3. Responding
   4. AEDs

Cardiac Rehabilitation

General

• Cardiac Rehabilitation: Programme finder
• British Heart Foundation: Cardiac rehabilitation
• British Heart Foundation: Cardiac rehabilitation: Your questions answered
• SIGN: SIGN 150: Cardiac rehabilitation

Self Management

• NHS: The Self Care Toolkit: an interactive guide to your wellbeing
• NHS Lothian: The heart manual

Exercise

• East Cheshire NHS Trust: Cardiac rehabilitation exercise video – from the Cardiac Rehab Team (YouTube)

Sexual Activity

• Heart failure matters: Sex and heart failure
• CHSS: Living with your chest condition: Sex and intimate relationships
• CHSS: Living with your heart condition: Your sex life
• Relationships Scotland: I’m having sex problems
• British Association of Sexual Health and HIV

Diet

• Scottish Government: Healthier Scotland: Food & Eating
• CHSS: Healthy Eating

Practical

• Work:
  • CHSS: Returning to work
  • CHSS: Heart conditions: How to cope with returning to work
  • BHF: Returning to work with a heart condition
  • Healthy Work: Heart conditions and returning to work

• Driving:
  • Gov.uk: Cardiac problems and driving
  • BHF: Driving with a heart condition
  • CHSS: Driving with a medical condition
  • Sudden Cardiac Arrest: Cardiac arrest, ICD and your driving licence

• Insurance:
  • CHSS: Living with your chest condition: Insurance
  • BHF: Living with a heart condition: Money issues
  • CHSS: Financial Support

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Mental Health & Wellbeing

• Moodjuice
• Living Life to the Full
• Breathing Space: Open up when you”re feeling down
• CHSS: Coping with depression and feeling down
• CHSS: Coping with stress and anxiety
• NHS Choices: Mindfulness
• NHS Choices: Depression
• Mind, the mental health charity: What is CBT? | Making Sense of Cognitive Behavioural Therapy (YouTube)

Support for Carers

• Mind for better mental health: How to cope as a carer
• Carers trust: Mental health conditions

Relaxation

• Healthy Place America’s Mental Health Channel: Relaxation Therapy for Anxiety Disorders (NB you need to scroll quite far down before reaching content on relaxation strategies.)
• National Center for Complementary and Integrative Health: Relaxation Techniques for Health
• Patient: Relaxation Exercises and Mindfulness

Spiritual Care

• Spiritual care matters: An introductory resource for all NHS Scotland Staff (PDF)
• NES Community chaplaincy listening (CCL)

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Post Traumatic Stress Disorder

• NHS Lothian: Our Services / Rivers Centre
• PTSD UK
• Mind: Post-traumatic stress disorder (PTSD)

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Peer Support

A number of regional cardiac peer support groups are available in Scotland. Information on these can be obtained from the Chest Heart & Stroke Advice Line Nurses:

• Freephone: 0808 801 0899
• Email: [email protected]
• Text: NURSE to 66777

• Sudden Cardiac Arrest UK
• Hearte Rescue Project

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Brain Injuries

• Edinburgh Headway
• Headway: Caring for someone with a brain injury
• Brain Injury Rehabilitation Trust (BIRT)
• Synapse: Reconnecting lives: Impact of brain injury on families & carers

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Inherited Conditions

• • Familial Arrhythmia Network Scotland
  • Cardiac Risk in the Young
  • Arrhythmia Alliance
  • Association of Genetic Nurses and Counsellors
  • Subcutaneous ICD

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Death & Dying

Planning Care

• Good Life, Good Death, Good Grief
• Good Life, Good Death, Good Grief – Making an Anticipatory Care Plan
• Scottish Government: Anticipatory Care Planning: Frequently Asked Questions
• NHS Highland Anticipatory Care Patient Alert (ACPA) Form Pack [PDF]
• Dying Matters: The resuscitation conversation

Do Not Attempt Cardiopulmonary Resuscitation

• Scottish Government (2016) Cardiopulmonary Resuscitation Decisions: Integrated Adult Policy
• Respect: Recommended Summary Plan for Emergency Care & Treatment/ ReSPECT and You: Planning Together Information for patients, families of patients and members of the public

Practical Issues

• CRUSE Bereavement Care Scotland
• Scottish Government: What to do when some after a death in Scotland: practical advice at times of bereavement: revised 11th edition 2016 (web only)
• Crown Office and Procurator Fiscal Service: Our role in Investigating Deaths
• Directory of all UK Funeral Directors & Undertakers

Bereavement

• NHS Choices Dealing with Grief and Loss
• Moodjuice: Bereavement self-help guide
• CRUSE Bereavement Care Scotland
• NHS Education for Scotland: Support Around Death Scotland

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Miscellaneous

Organisations

• Chest Heart & Stroke Scotland
• Scottish Ambulance Service
• Scottish Ambulance Service – Community First Responders
• Scottish Fire & Rescue Services
• BASICS Scotland
• Save a Life Scotland
• RESUS.org
• Resuscitation Council (UK): A guide to Automated External Defibrillators (AEDs) PDF
• Scottish Government: Health and Social Care
• NHS Education for Scotland
• CRUSE Bereavement Care Scotland
• Emergency Medical Research Group Edinburgh
• SIGN Guidelines
• Familial Arrhythmia Network Scotland
• Cardiac Risk in the Young
• Arrhythmia Alliance
• Association of Genetic Nurses and Counsellors
• British Society for Genetic Medicine
• Diabetes UK

Strategies

• Out of Hospital Cardiac Arrest: A Strategy for Scotland (PDF)
• Out of Hospital Cardiac Arrest: A Strategy for Scotland: Review 2015/16 [.pdf]

Responding

• Scottish Government (2016): Exploring the knowledge, attitudes, and behaviour of the general public to responding to out-of-hospital cardiac arrest

AEDs

• Resuscitation Council (UK): A guide to AEDs

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